This post is actually from yesterday--Wednesday, April 24, 2013--I couldn't get the blog to work until tonight.
|
Brinel was very proud of his hat! |
|
Brilner and Milo |
Horse therapy was different again today. One of the regulars, Rosaline, couldn't go
because she has been having more and more seizures. I understand that she had a couple of them
this morning. So, I got to pick another
child to go in her stead. I wanted to
try Marvens or Catelain, but I wasn't sure how they would react, and if the
reaction was negative, I knew I couldn't handle them. I don’t even think Brinel could handle
them. Instead, I chose to have Brilner
go. I fell in love with him back in November
2009 on my first mission trip. At the
time, he couldn't walk, and he had a killer smile. He still has the smile, he can now walk, but
he can be quite the stinker. He’s not
always so cute.
|
Brinel on the horse for the first time |
|
Brinel and his "cowgirl" Christina |
However, he
was a champ at horse therapy! He
sometimes pulled the “I don’t want to go where you are taking me so I’m just
going to flop down” routine. But,
overall he loved it. He wasn't afraid of
the horses. He loved riding them. He won the hearts of the workers. I think I fell in love with him again! It’s so good to see the kids respond
positively to new situations and new therapies.
I don’t know whether he will get to go again, but I would love to see it
happen. As long as Rosaline can keep
going, too!
I have
grown in my respect for P.T.’s and O.T.’s while I've been here. Today, my respect for them has reached new
heights. A couple of therapists were
here Monday and Tuesday through Healing Hands for Haiti. They taught me some tricks for teaching kids
how to eat and develop mouth muscles.
They made it look so easy. It’s
not. It’s hard. It’s messy.
I started
last night working with Jean-Daniel on how to drink from a bottle. He has never learned how to suck, which means
that his mouth muscles are weak. This
weakness leads to lots of drooling. He
wanted to chew on the nipple instead of sucking at it to get water out. I just about lost it last night. However, I learned that the cheap baby
bottles I had purchased didn't have holes in the nipples (maybe that’s how they
all come? I don’t know.) No wonder the poor kid couldn't get any water
out! Even after poking a whole in the
nipple he still struggled to get water out.
He just couldn't figure out how to suck.
I did everything the therapist showed me, but no luck. I finally gave up.
This morning
at horse therapy I tried again with the eating and drinking from the
bottle. Jean-Daniel did great with the
eating. I held his mouth closed and ran
my finger down his throat to induce swallowing.
It worked! He ate without much
drooling. He was only able to drink a
little bit; he continued to chew on the nipple instead of sucking. Let me tell you, it’s hard to hold the
bottle, keep his head upright (not tilted totally back like a baby bird), and
stroke the throat so that he will swallow.
In about 15 minutes he managed to swallow about ½ ounce of water.
Lunch was
just messy. Sloppy. Drooly.
I decided I could work with both Jean-Daniel and Phonsley at the same
time. Big mistake. I had them sit at the same small
table—mistake number one. Phonsley doesn't have the core strength to sit up and feed himself. He fed himself just fine yesterday, but he
was sitting in a wheelchair that gave support so that all he had to do was
focus on feeding himself. Today, he had
a hard time finding his mouth; some of the food first went toward his eye and
then slowly made its way to his mouth.
The poor boy would've starved to death if I hadn't helped at times. As it was, much of the food landed on the
floor, on him, in his hair, anywhere but his mouth.
Jean-Daniel
just about caused me to lose it. It
started okay, but as we went I had a harder and harder time doing everything I
needed to: hold the head up, get the food into his mouth, hold the mouth closed
so that the food stays in, and then stroke the throat so that he would
swallow. Again, as much food was on him,
on the floor, or on the table as in him.
It’s a good thing I had the boys take off their shirts before we started
or they would have needed whole new outfits.
They just needed to put on new shorts due to the mess. I didn't have the patience to work with
Jean-Daniel again on the drinking. I was
whooped just after the eating portion of lunch.
|
My practice field for driving my motorcycle |
The people
who do this time of therapy for a living have my utmost respect. It’s hard, messy work, and I think the
rewards of seeing progress are off in the distance.
I practiced
with the motorcycle again today.
Tomorrow Sony is going to go to the police station to apply for a
license for the bike. Hopefully, they
will give some sort of temporary license plate so that I can start driving on
the roads! I can hardly wait to go out
on my own. I don’t have to go fast or
far. I just want the freedom to head out
on my own.
I"ll attach today's updates to this post. I spent the day working with the kids on therapy. Breakfast with Jean-Daniel went better. I think more breakfast went into him instead of on him. Phonsley did okay sitting in his wheelchair and eating at the table in the kitchen, but I think the nannies cheated and helped him along. I know they helped him at lunch. Phonsley really does make a mess when he eats rice and beans (it's probably not the best food to work with when trying to teach a kid how to feed himself). The nannies did get a bit upset with me because he was making a mess and taking so long. One started to feed him just as I was finishing up with Jean-Daniel. I told her I would take over and help him, but she said that he wasn't doing a very good job. I just replied that he needed to practice.
Jean-Daniel did a great job at lunch! Hardly a mess at all. A big part of the success goes to him, but I'm also getting better at helping him. This morning when I tried the bottle again with Jean-Daniel he managed to drink about an ounce of water. It's like he gets it for a few seconds and then goes right back to biting on the nipple. The drinking part frustrates me. But, at least it's less messy than the beans and rice!
Sister Emma, Gertrude's real sister, called today to ask whether I would be willing to do some therapy with a one-year-old girl. Somehow the baby's mother is connected to the school/work program run by Sister Emma's convent. I said sure; I mean, I'm not going to say no. However, I'm concerned that people think I know more than I do. I've learned a lot since I've been here, but I'm no expert. If this keeps up I may need to look into training as a P.T./O.T.!